Good afternoon,    My name is Omaira Tejada. I am an alum from City College of New York. I am currently a Patient Outreach  Coordinator for Preserve our Legacy, Inc. I am reaching out to you for support in helping pass Jaden’s Law  NY (A4171) by participating this coming June 9th, 2015 for our lobby day to Albany.     About Preserve Our Legacy    Preserve Our Legacy is a not­for­profit 501(c)(3) organization that was started after the devastating loss of a  3­year old boy named Jaden Hilton. Jaden was diagnosed with leukemia in April 2006, and to survive he  needed a stem cell (bone marrow, PBSC or cord blood) transplant. Unfortunately for Jaden, no one in his  family was a match and he needed an unrelated donor. Due to the lack of available donors within the  National Registry, Jaden, like many other ethnic patients, lost his battle because he could not find a match.  After his death, Preserve Our Legacy's mission became to increase awareness about the need of bone  marrow, peripheral blood stem cells (PBSC), and cord blood within various ethnic groups.    Accomplishments    ● August 25, 2010 – NJ Governor Christie signed Jaden’s Law into legislation  ● December 2010 – P.O.L. Cord Blood Program launches at Harlem Hospital  ● May 3, 2011 – NY Governor Cuomo signs resolution naming May 3 “Cord Blood and Bone Marrow  Registration Day for NY State”  ● Now in 2015, we want Jaden’s Law (NY A4171) to be passed in NY State    Facts About Jaden’s Law    ● Information and awareness about bone marrow, peripheral blood stem cells (PBSC) and cord blood  on NYS Department of Motor Vehicles with online brochure.  ● Adding information about the need of donors with voter registration card.  ● Online brochure about need of bone marrow, peripheral blood stem cells (PBSC) and cord blood.  Define details about treatment options provided along with the need of ethnic donors on NYS  Department of Health website.  ● Provide locations where individuals can register to donate bone marrow, peripheral blood stem cell  (PBSC) and cord blood within New York State and NYC.     Lobby Day­ June 9th, 2015  ­Time: 6:30 am ­ 5 pm  ­Where: State Capitol ­ Albany, NY  ­Transportation will be covered    I hope to hear from you soon. This is a great way for you and your group to contribute to the overall  well­being of individuals, families and kids suffering from life­threatening diseases, especially ethnic groups.  You will have the opportunity to learn about the process behind passing a law and much more. 

   

Good afternoon, My name is Omaira Tejada. I am an ... -

Coordinator for Preserve our Legacy, Inc. I am reaching out to you for support in helping pass Jaden's Law. NY (A4171) by participating this coming June 9th, ...

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