Methods Support & Development Platform Alyssa Lam, Dr. Maria Santana, Sandra Zelinsky, Kimberly Manalili

Methods Support & Development Platform Vision To create a collaborative, knowledge sharing environment, towards becoming a centre of excellence in research methodology in the health and healthcare data

Tools for better health!

Methods Support and Requests

Activities • Support researchers in developing methods for POR • Over 100 requests, including requests from AH, AHS, researchers and clinicians researchers supporting local and national projects

National Demo Project SPOR Manitoba Patient-Reported Outcome Measures Leads: Dr. Lisa Lix (University of Manitoba) and Dr. Maria Santana (University of Calgary and SPOR Methods Platform)

APPROACH Project Health Related Quality of Life (HRQOL) Assessment Patients with Cardiovascular Disease Lead: Dr. Tolulope Sajobi Methods Platform SPOR Lead: Danielle Southern

Spinal Cord Injury Measure Health related quality of life measurements Spinal cord injury specific Lead: Dr. Chester Ho (University of Calgary) Methods Platform SPOR Lead: Dr. Maria Santana

Development of Methods

Person-Centred Care Quality Indicators

Data Quality Assessment Framework

ICD Case Definitions

Dissemination of Methods LunchBox Seminar Series • Sandra Zelinsky – “An Overview of Patient Oriented Research” • Dr. Maria Santana – “Patient’s Transition Across the Continuum of Care”

Tools for Better Health Podcast Series • Dr. Jose Valderas Martinez – Ep. 4 “The Use of Patient-Reported Outcome Measures in Clinical Practice” • Elizabeth Gibbons – Ep. 6 ”Capturing Patient Perspectives of Outcomes and Experiences of Care”

Collaborations AbSPORU Platforms National SPOR Units • British Columbia • Manitoba

RCT • Data Education

Discussion How do you work as a team to support other researchers and develop methods?

Discussion How has working together changed your practice or approach to POR?

Discussion What are 2-3 recommendations you have for researchers looking to develop methods for POR?

Thank you! Contact Us: [email protected] @themethodshub

www.themethodshub.com

SPOR SI- Methods Platform Panel Presentation.pptx.pdf

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