CLAHRC Yorkshire and Humber

Background

Public Involvement Strategy

The Yorkshire and Humber region has a long tradition of and a strong commitment to Public Involvement (PPI), with large numbers of research activities involving a public participation at each level of the research cycle. In addition, participation by the public is fundamental to our user-centred healthcare design work within a number of our Themes. The establishment of the National Institute for Health Research Collaboration for Leadership in Research and Healthcare Yorkshire and the Humber (NIHR CLAHRC YH) in January 2014 provides an opportunity to work with partner organisations across the region to build on and strengthen this work as a component of the Collaboration’s co-production principle and to align regional activities with national need. The CLAHRC YH recognises that patient and public involvement is fundamental to our research. The NIHR requires that each CLAHRC delivers a PPI strategy, as a core component of its activities. CLAHRC YH PPI activity is supported by the establishment of a PPI Working Group, consisting of researchers and academics with expertise in the field of PPI. This working group is supported by a generic advisory group CRAG (Consumers in Research Advisory Group). A PPI Facilitator works to support the delivery of the main objectives of the strategy. This strategy is designed to outline our vision for PPI and the actions that we propose to take to achieve this vision.

Principles Our approach to PPI within CLAHRC YH is based on two key principles: 1. That patients and the public have a right to be involved, engaged with or participate in our work, especially that which directly effects them 2. That patients and the public bring their knowledge of ill health and services that can directly contribute towards our work, thereby increasing its acceptability and applicability.

Strategic Objectives In 2015 the NIHR published the Going the Extra Mile report which challenges researchers to lead by example by working in partnership with the public to deliver high quality research; and was endorsed by the Chief Medical Officer. The report’s 10-year strategic goals form the core of our Strategic Objectives. We will seek to: Page 1 of 4 PPI Strategy WEBSITE January 2016 19/1/2016

CLAHRC Yorkshire and Humber

1. Ensure that opportunities to engage and become involved in research are visible to the public 2. Value the experience of patients, service users and carers as a fundamental and valued source of knowledge 3. Require public involvement as a part of high quality research conducted by researchers and their institutions 4. Ensure that public involvement is locally driven and relevant whilst strategically consistent with the NIHR’s goals 5. Ensure that evidence of what works is accessible so that others can put it into practice 6. Contribute towards the NIHR presence and influence for working in partnership with the public

Reporting The PPI working group is responsible to the CLAHRC YH Executive Group, which meets approximately 9 times per year. In addition it provides regular reports for • • •

the regional Strategic Localism PPI Group the national PPI in CLAHRC group (PPIC), quarterly CRAG

These reports form the basis of the relevant section of the NIHR annual report.

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CLAHRC Yorkshire and Humber

Action Plan 2015 - 17 This action plan is subject to revision as our working knowledge around types of and levels of Patient and Public (PPI) involvement and engagement evolves. It will be driven by the PPI Working Group and will be reviewed on an annual basis. Strategic Objective

Deliverables

Evidence Source

1. Opportunities to engage and a) Update of website website become involved in research are visible to the public b) To establish and provide PPI training and signpost to PPI THEME ACTIVITY training as part of public and staff development REPORTS, Theme meeting minutes 2. The experience of patients, a) To ensure that projects and activities (where appropriate) THEME ACTIVITY service users and carers is a have PPI input (engagement, involvement, participation) REPORTS, Theme fundamental and valued minutes, Exec source of knowledge reports b) CRAG input into this strategy Core team minutes 3. Public involvement is a required part of high quality research conducted by researchers and their institutions 4. Public involvement is locally driven and relevant whilst strategically consistent with the NIHR’s goals

Review Date June 2016 June 2016 June 2016

a) To ensure that all projects and activities (where appropriate) have PPI input

THEME ACTIVITY REPORTS project list

June 2016

a) To encourage service users to propose research ideas/work in conjunction with researchers to develop research ideas b) To link with partner organisations to strengthen PPI, establish best practice and deliver a co-ordinated

THEME ACTIVITY REPORTS, Theme minutes, Exec rep Strategic local minutes

June 2016 June 2016 Page 3 of 4

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CLAHRC Yorkshire and Humber

Strategic Objective

Deliverables

Evidence Source

Review Date

Strategic Localism reports THEME ACTIVITY REPORTS

June 2016 June 2016

approach

5. Evidence of what works is accessible so that others can put it into practice

c) To map relationships between the collaboration and PPI groups in the region and beyond a) To collaborate with national CLAHRCs to critically evaluate the impact of PPI at project, theme and CLARHC level, thereby providing evidence of what works

b) Make our PPI activities visible through Actionable Tools, the e-repository, the CLAHRC YH website and workshops where appropriate with other partners in the region. 6. Contribute towards the NIHR a) Contribute to Strategic localism and national initiatives presence and influence for working in partnership with b) Production of conference and peer review publications the public highlighting prominence of PPI in CLAHRC YH c) Produce options paper for resourcing of PPI support

THEME ACTIVITY REPORTS Core THEME ACTIVITY REPORTS Core Team minutes

June 2016

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